At the end of 2017, after almost 38 years living with type 1 diabetes, I’d pretty much given up on my childhood dream of having an artificial pancreas. I was shocked, thrilled and instantly hooked, to discover that some seriously inspiring people with diabetes or loved ones with diabetes, had actually taken diabetes tech into their own hands and created the artificial pancreas themselves.
This blog is an attempt to make sense of 40 years of life with type 1, using all the skill I can muster from:
- 15 years as a psycho-social health researcher & 2 years in tech usability/trust research
- my work as a professional communicator
- two and a half years doing a kind of n=1 observation of my own journey using user-innovated systems OpenAPS, Loop, AndroidAPS, and Nightscout
- paying attention to industry, and the experiences of others on the same trajectory.
I’m fascinated by the #WeAreNotWaiting movement, and the people in it who refused to accept the status quo. And since starting DIYAPS in May 2018, I’ve been obsessed with:
- the psycho-social impact of closed loop systems
- the potential of open source and open standards to transform healthcare
- new insights into the diabetes experience gained through DIYAPS and how these allow us re-think, and improve on, diabetes care.
I’ve had the great fortune to work with some incredible people over the years and I’ve met people who changed the course of history. We all do actually, even through a smile or an authentic conversation.
Most of all I’m just thrilled for the next generation of people with T1D. I hope they can run headlong into the future and never look back. I strongly believe that closed loop artificial pancreas tech is the biggest development in diabetes since insulin. It needs to be affordable and accessible for all. Right now.
Follow me on Twitter @T1Bionic
You might also enjoy this interview with me, Jim Matheson and Tien- Ming Hng, on the ABC Science Show.
I’d love to hear from you.
Mary Anne Patton, Australia