In response to yesterday's FDA warning about off-label use of automated insulin delivery systems, the core developers of DIY systems AndroidAPS, Loop and OpenAPS shined through once more. Not only are they reminding all users of DIY systems to report adverse events, but they are working on yet another innovation that does not exist: A … Continue reading DIY community committed to transparency, openness, integrity
Author: @T1Bionic ~ Mary Anne Patton
First hypo
Just after I started using the DIY hybrid closed loop system, OpenAPS, for my type 1 diabetes, a lot of old memories started bubbling to the surface. Memories of my life with diabetes. I guess possibly these were what is referred to as 'suppressed memories', but it seems a bit melodramatic to say so. One … Continue reading First hypo
iPhone shortcuts for OpenAPS
I’m planning to trial AndroidAPS in the coming weeks. It’s exciting and intimidating. And it’s made me take stock of what I’ve loved about the iPhone/OpenAPS combination I’ve been using for the past eight months. Doing things quickly on the go, without too much thought, is the way I want to run my diabetes, and … Continue reading iPhone shortcuts for OpenAPS
I met an old man…
A few months ago I met a 96 year-old man in my dentist's waiting room. I told him I had an artificial pancreas. I was ecstatic - showing my OpenAPS rig to complete strangers at the time, expecting them to be as interested and thrilled as I was about this monumental development. Most people looked … Continue reading I met an old man…
#WeAreNotWaiting for access and affordability
For the first time in history, we have a chance to make type 1 diabetes complications a thing of the past. There is an urgent need to put systems in place now to make sure hybrid closed looping technology is as accessible and affordable as possible. One major barrier to uptake is the cost of … Continue reading #WeAreNotWaiting for access and affordability
Dana Lewis – patients are experts
I was ecstatic to learn that Dana Lewis, who designed the OpenAPS system with Scott Leibrand, was going to be a keynote speaker at the Australian Health Informatics conference #HIC18 in Sydney. I was very fortunate in being able to meet her and Scott, and the brilliant group of Sydney loopers, at the Opera House … Continue reading Dana Lewis – patients are experts
Consumer co-design
There was a lot of talk about co-designing diabetes health systems with patients at #HIC18 and I was pleased to see a session on consumer co-design scheduled at the Australian Diabetes Congress (August 22-24) in Adelaide. I was not able to attend the conference but I'm sure the main messages were summed up by this slide: User … Continue reading Consumer co-design
The verdict is in!
Drumroll please... Results Three months prior to looping › first three months of looping Predicted HbA1C 8.2 › 6.8 Time in range of 43% › 70% (76% in Nightscout) Average glucose 10.5 › 8.2 (8.3 in Nightscout) Standard deviation 3.6 › 2.6 Lows 1% › 1% Before Dexcom Clarity report After Nightscout report So far so good For … Continue reading The verdict is in!
Starting to loop
A frustrating start I was finally on the verge of looping and yet the last bit of the wait seemed the longest. We had all the pieces and my partner Michael had installed everything. But it wouldn't work. It took us awhile to figure out that the Edison I had required an external antenna! One … Continue reading Starting to loop
Refresher course in T1D
As well as logging my data in Nightscout and trying to be more mindful of everything I did with my diabetes, I thought it would be worth a visit or three to a diabetes educator. But it had to be the right one... I had seen an absolutely lovely woman at my diabetes clinic over … Continue reading Refresher course in T1D







